PROMUSE: Knowledge, perceptions and limitations of the use Patient Reported Outcomes Measures (PROMs) by physicians in allergic diseases.

Primary Objectives:

To describe the knowledge, perceptions and limitations of the use Patient Reported Outcomes Measures (PROMs) by physicians in allergic diseases in order to increase engagement and uptake of these tools in clinical practice.

Secondary objectives:

  • To develop a questionnaire that evaluates knowledge, perceptions and limitations of physicians in the use of patient-reported outcome measures (PROMs) in urticaria, angioedema, allergic rhinitis, allergic conjunctivitis, atopic dermatitis, rhinosinusitis and asthma.
  • To describe the factors that influence PROs data interpretation or use in clinical practice.
  • To identify what PROs have the most utility for healthcare professionals during their daily clinical practice according to the specific disease studied.


Study type: Questionnaire

 

How to participate: Please follow these steps:

  • Please get in contact with the project team, send your emails to Dr. Ivan Cherrez Ojeda at ivancherrez(at)gmail.com or Dr. Karla Robles Velasco at karlaroblesvelasco(at)gmail.com no later than 1st of November.
  • Then you will receive a link or a QR code for the PROMUSE Survey that will enter the pseudonymized doctor information directly to the database.
  • Full protocol is attached in English for participating centers who need to obtain and approval fron their local IRB/ECA.


Deadline: January 31st, 2022

Hear Associate Professor Jonathan Peter (Division of Allergy and Clinical Immunology, Department of Medicine, University of Cape Town, South Africa; Allergy and Immunology Unit, University of Cape Town Lung Institute, South Africa) explain regional differences in urticaria in South Africa, with a focus on epidemiology, patient beliefs and education, and the CRUSE App.

Link to episode

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We are very pleased to cordially invite you to our forth, free UCARE LevelUp Fireside Chat taking place on: Wednesday, June 29th, 3:30 to 4:15 p.m. CEST.

Join us as 4 UCARE physicians meet to discuss the topic “Covid-19, vaccines, urticaria and angioedema"

The Faculty will be:
Emek Kocatürk Göncü                     Koc University Hospital, Istanbul, Turkey
Daria Fomina                         ...

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We are pleased to welcome Niall Conlon and J David M Edgar representing the St. James’s Hospital in Dublin, Ireland to the UCARE network. As this is our first UCARE center in Ireland, we are confident that there will be many UCAREs to follow in Ireland and we are looking forward to an intensive collaboration.


You will find:

  • An overview of all certified and applying UCARE centers here: https://www....
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Contact us

GA²LEN coordinating Office
c/o DGAKI
Robert-Koch-Platz 7
10115 Berlin, Germany

UCARE office
Laura Schwenner

info(at)ga2len-ucare.com