PROMUSE: Knowledge, perceptions and limitations of the use Patient Reported Outcomes Measures (PROMs) by physicians in allergic diseases.

Primary Objectives:

To describe the knowledge, perceptions and limitations of the use Patient Reported Outcomes Measures (PROMs) by physicians in allergic diseases in order to increase engagement and uptake of these tools in clinical practice.

Secondary objectives:

  • To develop a questionnaire that evaluates knowledge, perceptions and limitations of physicians in the use of patient-reported outcome measures (PROMs) in urticaria, angioedema, allergic rhinitis, allergic conjunctivitis, atopic dermatitis, rhinosinusitis and asthma.
  • To describe the factors that influence PROs data interpretation or use in clinical practice.
  • To identify what PROs have the most utility for healthcare professionals during their daily clinical practice according to the specific disease studied.


Study type: Questionnaire

 

How to participate: Please follow these steps:

  • Please get in contact with the project team, send your emails to Dr. Ivan Cherrez Ojeda at ivancherrez(at)gmail.com or Dr. Karla Robles Velasco at karlaroblesvelasco(at)gmail.com no later than 1st of November.
  • Then you will receive a link or a QR code for the PROMUSE Survey that will enter the pseudonymized doctor information directly to the database.
  • Full protocol is attached in English for participating centers who need to obtain and approval fron their local IRB/ECA.


Deadline: January 31st, 2022

In this episode, photodermatology expert, Professor Lesley Rhodes, sheds light on one of the rarer forms of chronic inducible urticaria: solar urticaria. This includes a practical guide to diagnosis and referral, as well as a summary of the unmet needs that remain in the management of this understudied condition.

Link: https://www.medthority.com/chronic-spontaneous-urticaria-learning-zone/csu-r...

Read more

The 1st UCARE LevelUP Fireside Chat on December 1st 2021 was dedicated to the topic “The next generation: What do junior urticariologists expect from the UCARE network, what do seniors expect from juniors?”.

Follow the discussion of Luis Felipe Chiaverini Ensina (Federal University of São Paulo, São Paulo, Brazil), Salma Taha (Hamad Medical Corporation, Qatar, Doha), Hanna Bonnekoh (Charité,...

Read more

In this newsletter we are discussing the new EAACI Guideline for the Definition, Classification, Diagnosis and Management of Urticaria, and look at recent Publications relating to Bradykinin receptors, Machine learning and the effects of Spirituality on the experience of CU. We Talked to Dr Dorothea Terhorst-Molawi and Dr Mojca Bizjak about their project Cold-CU, what motivated them to start a...

Read more

Contact us

GA²LEN coordinating Office
c/o DGAKI
Robert-Koch-Platz 7
10115 Berlin, Germany

UCARE office
Laura Schwenner

info(at)ga2len-ucare.com