Recording of CU Patient Burden of the Disease

UCARE LevelUp webinar: "CU Patient Burden of the Disease" on November 25th, 2021 at 5:00 pm CET

The overall aim of this webinar is to define the most stressing points about the complete burden of the disease.

The webinar will look at OPEN questions in Chronic Urticaria and will address the audience with said questions, stimulating their suggestions.

Agenda

Welcome 5’
Ana Giménez-Arnau
Dermatology Department Hospital del Mar, IMIM Universitat Autònoma de Barcelona

The Global Burden of Chronic Urticaria for Patients:
how it is and how could we reduce it?
15’
Margarida Gonçalo
Coimbra University Hospital & Faculty of Medicine, University of Coimbra

The Global Burden of Chronic Urticaria for Society:
how it is and how could we reduce it?
15’
Luis Ensina
Alergia e Imunologia Clínica, Federal University of São Paulo

The Burden of Chronic Urticaria in Pediatric Patients:
how it is and how could we reduce it?
10’
Moshe Ben-Shoshan
McGill University Health Center- Montreal, Montreal Children’s Hospital

Questions and answers 15’

In this episode, photodermatology expert, Professor Lesley Rhodes, sheds light on one of the rarer forms of chronic inducible urticaria: solar urticaria. This includes a practical guide to diagnosis and referral, as well as a summary of the unmet needs that remain in the management of this understudied condition.

Link: https://www.medthority.com/chronic-spontaneous-urticaria-learning-zone/csu-r...

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The 1st UCARE LevelUP Fireside Chat on December 1st 2021 was dedicated to the topic “The next generation: What do junior urticariologists expect from the UCARE network, what do seniors expect from juniors?”.

Follow the discussion of Luis Felipe Chiaverini Ensina (Federal University of São Paulo, São Paulo, Brazil), Salma Taha (Hamad Medical Corporation, Qatar, Doha), Hanna Bonnekoh (Charité,...

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In this newsletter we are discussing the new EAACI Guideline for the Definition, Classification, Diagnosis and Management of Urticaria, and look at recent Publications relating to Bradykinin receptors, Machine learning and the effects of Spirituality on the experience of CU. We Talked to Dr Dorothea Terhorst-Molawi and Dr Mojca Bizjak about their project Cold-CU, what motivated them to start a...

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The recording refers to the Level Up session held on November 25th.

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In this episode, paediatric urticaria expert and UCARE driving force, Professor Petra Staubach-Renz reflects on her experience of treating children with chronic urticaria and calls for more research into this important yet understudied group of patients.

Link: https://www.medthority.com/chronic-spontaneous-urticaria-learning-zone/csu-resources/#tab-1

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You are cordially invited to our upcoming UCARE LevelUp webinar on the topic: CU Patient Burden of the Disease to be held on November 25th, 2021 at 5:00 pm CET.

The overall aim of this webinar is to define the most stressing points about the complete burden of the disease.

The webinar will look at OPEN questions in Chronic Urticaria and will address the audience with said questions,...

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On November 19th, Dr Isabelle Boccon-Gibod will speak at the Urtic Hour live from France. She is responsible for CREAK, the national reference center for angioedema at Grenoble University Hospital, which is dedicated to all patients with angioedema regardless of its cause. This is a way of caring for patients that is different from what we experience in Canada. It will be very interesting to...

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Does our current understanding of the pathogenesis of CSU provide hope of a cure for this challenging disease? Find out what Dr Riccardo Asero has to say as he joins our host to discuss some of the most fundamental questions in the field of urticariology.

Link: https://www.medthority.com/csu-learning-zone/podcast-series/

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We are very pleased to cordially invite you to our 1st UCARE LevelUp Fireside Chat taking place on December 1st, 2021, 3:00 to 4:00 p.m. CET.

Join us as 4 UCARE physicians meet to discuss on the following exciting topic: "The next generation: What do junior urticariologists expect from the UCARE network, what do seniors expect from juniors?"

The faculty will be:
Luis Felipe Chiaverini Ensina...

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It is a great pleasure to share the first newsletter from GA²LEN UCARE LevelUp Program which is a Physician Education and Communication Program on Urticaria. Our October newsletter includes Hot topics (Covid-19 in this issue), projects of UCAREs, publications from UCARE collaborative studies, highlights from recent scientific meetings, treatment advice as well as upcoming events (UCARE Hiroshima).
...

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Contact us

GA²LEN coordinating Office
c/o DGAKI
Robert-Koch-Platz 7
10115 Berlin, Germany

UCARE office
Laura Schwenner

info(at)ga2len-ucare.com