Recording of CU Patient Burden of the Disease

UCARE LevelUp webinar: "CU Patient Burden of the Disease" on November 25th, 2021 at 5:00 pm CET

The overall aim of this webinar is to define the most stressing points about the complete burden of the disease.

The webinar will look at OPEN questions in Chronic Urticaria and will address the audience with said questions, stimulating their suggestions.

Agenda

Welcome 5’
Ana Giménez-Arnau
Dermatology Department Hospital del Mar, IMIM Universitat Autònoma de Barcelona

The Global Burden of Chronic Urticaria for Patients:
how it is and how could we reduce it? 15’
Margarida Gonçalo
Coimbra University Hospital & Faculty of Medicine, University of Coimbra

The Global Burden of Chronic Urticaria for Society:
how it is and how could we reduce it? 15’
Luis Ensina
Alergia e Imunologia Clínica, Federal University of São Paulo

The Burden of Chronic Urticaria in Pediatric Patients:
how it is and how could we reduce it? 10’
Moshe Ben-Shoshan
McGill University Health Center- Montreal, Montreal Children’s Hospital

Questions and answers 15’

News - Meetings - Projects

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All Things Urticaria – Podcast Episode 40: Chronic Urticaria - An Indian Perspective

In this episode, our host is joined by Professor Kiran Godse who shares his experiences of treating CSU in India. Professor Godse provides unmissable insights into the practicalities of CSU care, including economic considerations, as well as his plans to increase the UCARE network’s presence in India and facilitate wider dissemination of educational resources.

Link to episode


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Save the date: 3. UCARE LevelUp Fireside Chat on scientific projects - 19 May

Our next, free UCARE LevelUp Fireside Chat takes place on May 19th, 3:30 to 4:15 p.m. CEST.
Join us as 4 UCARE physicians meet to discuss on the following topic: Challenges in developing a scientific project in urticaria

The faculty will be:
Emek Kocatürk Göncü            
Koc University Hospital, Istanbul, Turkey – Senior UCARE physician
Jonathan Bernstein                
University of Cincinnati...

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All Things Urticaria – Podcast Episode 39: Chronic Urticaria - A North American Perspective

Professor Jonathan Bernstein joins the UCARE LevelUp podcast "All things urticaria" to discuss chronic urticaria (CU) care in the USA. In this episode, Professor Bernstein shines a light on the challenges faced by US-based physicians and highlights the potential benefits of conducting further research into the diverse population living with CU in North America.

 

Link to the episode

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UCARE LevelUp Newsletter 3 — April 28


In this newsletter we share:

  • The Chronic Urticaria Self-Evaluation APP, CRUSE® and the advantages for physicians and patients in using it.
  • Urticaria Conference 2021 and expand on some of the program’s highlights
  • Insightful physicians views on treatment of Chronic Inducible Urticaria (CIndU)
  • Interview with Dr. Ivan Cherrez about PROMUSE
  • Updates on the latest happening in LevelUp, 4U and the world of...
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All Things Urticaria – Podcast Episode 38: UCARE Behind The Scenes Special (Part 2)

In part two of this very special episode, Professor Marcus Maurer is joined once again by his colleagues, Laura, Julia, Reinhardt and Rebekka from the UCARE office to discuss the UCARE LevelUp and UCARE 4U programmes, which aim to inform and educate patients and physicians on the management of chronic urticaria.

Links:
www.medthority.com/chronic-spontaneous-urticaria-learning-zone/csu-resources/
podc...

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New UCARE Project: The Characterization of urticaria markers including anti-TPO and IgE in serum (CU-TIGER)

 Dear UCARE friends and colleagues,

 

We are launching a new project, which is called CU-TIGER, The Characterization of urticaria markers including anti-TPO and IgE in serum.

 

Background/ rationale

Two endotypes of chronic spontaneous urticaria (CSU) have been recently described, ie Type I autoimmune CSU (aiCSU), which is also called autoallergic CSU and mediated by IgE autoantibodies and...

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UCARE endorsed touchPANEL discussion: Unlocking the pathogenesis of chronic spontaneous urticaria

We are delighted to share the UCARE endorsed, touchIME, accredited touchPANEL DISCUSSION® - "Unlocking the pathogenesis of chronic spontaneous urticaria to inform the future treatment landscape'' has now launched on the touchIMMUNOLOGY® site in the CME zone.
 
You can view the activity here: touchIMMUNOLOGY® - touchimmunologyime.org/csu-pathogenesis-to-treatment
 
In this activity, the expert...

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UCARE Project CURICT has been completed

Congratulations to Ivan Cherrez Ojeda, Marcus Maurer and the UCARE physicians on successfully completing the UCARE Project CURICT.

The aim of CURICT was to assess the frequency and preference of Internet Communication Technologies (ICTs).  The results show that almost all patients with chronic spontaneous and chronic (CSU) and inducible urticaria have access to ICTs and more the majority sees the...

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All Things Urticaria – Podcast Episode 37: UCARE Behind The Scenes Special (Part 1)

In this very special two-part episode, Professor Marcus Maurer is joined by not one, but four of his UCARE office colleagues, Laura Schwenner, Julia Föll, Rebekka Locke and Reinhardt Britz, to give listeners exclusive insight into the inner workings of the UCARE network, including advice on how to become a UCARE center and updates on exciting new UCARE initiatives. 

Links:

www.medthority.com/chro...</span>

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All Things Urticaria – Podcast Episode 36: Are you CSU aware?

In this episode of the “All Things Urticaria”-Podcast, the host Dr. Marcus Maurer is joined by Dr Christian Vestergaard, who offers expert insight into the results of the AWARE study and highlights the urgent need for wider dissemination of the guidelines for CSU management.

Links:
www.medthority.com/chronic-spontaneous-urticaria-learning-zone/csu-resources/
podcasts.apple.com/gb/podcast/all-thin...

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Contact us

GA²LEN coordinating Office
c/o DGAKI
Robert-Koch-Platz 7
10115 Berlin, Germany

UCARE office
Laura Schwenner

info(at)ga2len-ucare.com