The usage, quality and relevance of information and communications technologies in patients with chronic urticaria: A UCARE study

Patients with chronic conditions are increasingly seeking information from information and communications technologies (ICTs) to manage their health. As of yet, it is not known which general or specific ICTs patients use to obtain information on health-related topics and specifically on CU, or how patients perceive the currently available information via ICTs. Gaining knowledge on this is important to better inform CU patients about their disease, to match the right informational content to the right ICTs, and to provide CU-specific ICT platforms if seen as necessary by patients.

Read more about the results of the first UCARE project at the link below:

https://authors.elsevier.com/sd/article/S1939455120303781

At EAACI 2021 touchIMMUNOLOGY were delighted to talk with Professor Marcus Maurer (Charité – Universitätsmedizin Berlin, Berlin, Germany) to discuss the Phase 1a study of CDX-0159 in patients with chronic inducible urticaria.

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The overall aim of this webinar is to improve the management and awareness of solar urticaria and its differential diagnoses by learning about the clinical spectrum of UV-light induced skin diseases

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In this episode, Dr Young-Min Ye shares the findings of her cutting-edge research into predictors of remission in chronic urticaria, and explains what is currently known about the role of Mas-related G protein coupled receptor X2 (MRGPRX2) in the activation of mast cells.

Link: https://www.medthority.com/csu-learning-zone/podcast-series/

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How do comorbidities affect patients with chronic spontaneous urticaria and what can be done to minimise their impact? Find out more on this crucial, yet understudied topic from our latest guest, Dr Simon Francis Thomsen.

www.medthority.com/csu-learning-zone/podcast-series/

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In this episode, our host is joined by Dr Moshe Ben-Shoshan, who shares his pioneering approach to treating paediatric patients and draws on his experience to debunk some of the common myths surrounding childhood urticaria.

https://www.medthority.com/csu-learning-zone/podcast-series/

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In this episode, our host is joined by UK-based dermatologist Dr Clive Grattan to address some of the most important unanswered questions in the field of chronic spontaneous urticaria.

LINK: www.medthority.com/csu-learning-zone/podcast-series/

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Join Drs Martin Metz and Ana Maria Giménez-Arnau as they discuss the latest data on new treatments in development for chronic spontaneous urticaria.

The goal of this activity is to educate on the latest therapeutic developments for the management of patients with chronic spontaneous urticaria (CSU)

https://www.medscape.org/viewarticle/953107?src=acdmpart_ucare_953107

Martin Metz, MD; Ana Maria...

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We are very pleased to announce that this year’s UCARE Conference will be held on December 9th-11th, 2021 in Hiroshima, Japan.

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Dear members of the UCARE and ACARE networks,

we regret to inform you about the passing of one of our esteemed members:

Professor Marek L. Kowalski (1952-2021),

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In this very special episode, our host meets Cassandra, a patient who has been affected by CSU for many years. Listen now for unmissable insights into the patient experience and to find out more about what you do to better support your own patients in the future. 

LINK: https://www.medthority.com/csu-learning-zone/podcast-series/

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Contact us

GA²LEN coordinating Office
c/o DGAKI
Robert-Koch-Platz 7
10115 Berlin, Germany

UCARE office
Laura Schwenner

info(at)ga2len-ucare.com