Urticariaday2019 -Who cares? ucare!

Soon it will be October 1st and urticaria day again. And who cares? UCARE! UCARE is a worldwide network of specialized treatment centers (Urticaria Centers of Reference and Excellence)

Who cares? UCARE!

Soon it will be October 1st and urticaria day again. And who cares? UCARE! UCARE is a worldwide network of specialized treatment centers (Urticaria Centers of Reference and Excellence) in which doctors, who are not only familiar with urticaria, but who also see their task in offering patients with urticaria the best possible care and treatment, work together.All members of the network guarantee to treat patients with urticaria according to the guidelines (within the scope of local possibilities). So, UCARE cares! UCARE is taking part in this year's urticarial day and is taking this great opportunity to raise awareness of urticaria among patients, their families, doctors, politicians, the press and the rest of the world. Furthermore, UCARE wants to promote available educational opportunities for other doctors so that they can use their knowledge to provide optimal care of urticaria patients. Regardless of UCARE's support, urticaria day remains a day where urticaria patients are the focus of attention. So join us for urticarial day 2019 and organize your own event! Invite other urticaria patients to a garage party! Is there a better opportunity to set up a regional self-help group? Inspire the doctors at your clinic with your enthusiasm for urticaria day 2019 - perhaps they will hold their own training event for doctors in the area or perhaps they will join the UCARE network. Continue to spread the news about urticaria day 2019, tweet and like, help to make urticaria day 2019 known to friends, family and other affected persons. You can post all your events with us so that your personal urticaria day 2019 will be a complete success. Every contribution counts – help us make urticaria day 2019 a worldwide success! Urticaria day 2019 was initiated by unev, the urticaria network e.V., UCARE and many organizations worldwide that are committed to the interests of patients with allergies and urticaria.

One of Allergy’s goals is to disseminate your research and expand the readership of your important data. As such, we have created a YouTube channel promoting the articles published in our journal.

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Dr Frank Siebenhaar brings us up to date on the differences between mastocytosis, urticaria and mast cell activation syndrome (MCAS). He also introduces CSUplus, an ongoing UCARE project that aims to shed light on the extracutaneous symptoms of chronic spontaneous urticaria.

LINK: https://www.medthority.com/csu-learning-zone/podcast-series/

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Dr Jorge Sánchez reflects on how it felt to give himself urticaria and explains what his bold experiment has taught us about the role of anti-TPO IgE in this disease.

Link: https://www.medthority.com/csu-learning-zone/podcast-series/

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Angioedema expert and ACARE founding father, Professor Markus Magerl, joins Professor Marcus Maurer to discuss all things angioedema and get the latest on the ever-growing ACARE network. 

Link: https://www.medthority.com/csu-learning-zone/podcast-series/


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Professor Marcus Maurer is joined by Dr Emek Kocatürk Göncü who addresses concerns regarding the impact of COVID-19 infection in patients with chronic urticaria and summarises the results of the recent UCARE project, PREG-CU.

 

Link: https://www.medthority.com/csu-learning-zone/podcast-series/

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For many years, antihistamines have been a cornerstone of chronic urticaria therapy, but is there room for improvement? In this episode, Professor Martin Church reflects on the enormous progress that has been made in the field of urticariology over the course of his career and discusses what is yet to come for patients with this devastating disease.

Link:...

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Professor Marcus Maurer is joined by “UCARE father”, Dr Luis Felipe Ensina, to discuss the frequently underestimated burden of urticaria, which Dr Ensina explains is not limited to the patients themselves, but may indirectly impact numerous friends and family members as well.

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With the sixth consensus meeting on the international EAACI/GA²LEN/EuroGuiDerm guideline for urticaria fast approaching, Professor Marcus Maurer is joined by guideline development group member, Professor Torsten Zuberbier, who explains what we can expect from this new edition.

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Patients with chronic conditions are increasingly seeking information from information and communications technologies (ICTs) to manage their health. As of yet, it is not known which general or specific ICTs patients use to obtain information on health-related topics and specifically on CU, or how patients perceive the currently available information via ICTs. Gaining knowledge on this is...

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In cooperation with many experts, scientists and medthority, a podcast series on the subject of Urticara has been created under the title: All things urticaria. Further episodes are constantly being created. At Apple Podcasts you can currently find all available episodes. You can listen to them in your browser or in Apple Podcasts. Have fun with it....

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Contact us

GA²LEN coordinating Office
c/o DGAKI
Robert-Koch-Platz 7
10115 Berlin, Germany

UCARE office
Laura Schwenner

info(at)ga2len-ucare.com