World Urticaria Day 2021: Who cares? U care!

Berlin, 21.09.2021 (GA2LEN UCARE Network). Burning, itching, pain - more than one percent of the world’s population suffers from chronic urticaria (hives) and the number is growing. Unfortunately, this disease still receives too little public attention. The GA²LEN UCARE Network, the Urticaria Network (UNEV) and the German Allergy and Asthma Association (DAAB) have therefore been initiating World Urticaria Day (UDAY) every year on 1 October since 2014. Together with their worldwide partners, the initiatives raise awareness of the disease with numerous campaigns. Under the slogan "Who cares? U care!", they call on those affected, doctors and interested parties to help shape UDAY. More information is available at www.urticariaday.org.

The goals of the events and offers that take place worldwide within the framework of UDAY, is to bring urticaria out of its shadowy existence, to encourage those affected and those treating it to exchange ideas and to find new solutions together against the disease and its symptoms.

Available everywhere: Online webinars and lectures on urticaria

This year, the focus is on digital initiatives that includes the UCARE video series on urticaria and COVID-19 available on the UDAY YouTube channel (@urticariaday) from the 1st of October 2021. An informative urticaria quiz has also been developed by the GA²LEN UCARE Network that will be available in several languages via the Actionbound app.

Furthermore, the TikTok live event „Everything you ever wanted to know about urticaria – now is the time to ask!”  will be held by urticaria specialist Professor Marcus Maurer. The event can be found under the username @letmeaskmydad on October 1st at 8:00pm CEST.

Taking initiative: implementing your own UDAY actions

UDAY is the place where you can start taking action. Everyone is invited to shape the day in their own way and to start their own UDAY projects, such as a self-help group, especially if they have long-lived impact. Every contribution counts and can bring about long-term changes. Initiators can publish their activities directly on the UDAY website under the category "Events" (www.urticariaday.org).

Understanding urticaria: When it burns and itches

Cold wind, a hot bath, sweaty sports – many people react to everyday situations with an itchy rash that can be accompanied by swelling. One in four people is affected by urticaria at some point in their lives. In most cases, it heals within a few weeks (acute urticaria), however, in about one percent of the world population, the symptoms last longer and the disease becomes chronic. Chronic urticaria usually breaks out between the ages of 30 and 60, but many younger people are also affected. Women are affected about twice as often as men.[1]

High level of suffering: A heavy burden in everyday life

The sudden onset of intense redness, wheals and/or swellings on the skin considerably limits the quality of life of those affected[2] and has a significant impact on every day and professional activities[3]: Chronic urticaria can also have a negative effect on one’s social life, sleep quality, concentration, and performance, as well as cause psychological suffering.[4]

Confronting the disease: Visit specialised centres

Many sufferers unfortunately shy away from seeking medical treatment for their disease because of shame or previous treatment failures. There are however an increasing number of skin centers specialized in urticaria such as the GA²LEN Urticaria Centers of Reference and Exellence (UCARE) (available at https://www.ga2len-ucare.com/centers.html). There has been considerable progress in therapy and treatment of chronic urticaria, the goal is to achieve symptom-free treatment.

About the GA2LEN UCARE Network

The GA²LEN Urticaria Centers of Reference and Excellence Network (GA²LEN UCARE Network) is the biggest and most active global consortium of urticariologists and urticaria centers with the common goal to improve the treatment of urticaria. The focus is on common diagnostic and treatment guidelines, research, education and training activities for physicians and patients, but also on raising public awareness of urticaria. More information is available at www.ga2len-ucare.com.

 

[1] Weller, K. et al. (2010). Chronische Urtikaria. Prävalenz, Verlauf, Prognosefaktoren und Folgen. Der Hautarzt, 9 (61), S. 750-757.

[2] Maurer M, Weller K, Bindslev-Jensen C et al. Allergy 2011; 66:317-330; Staubach P, Eckhardt-Henn A, Dechene M et al. Br J Dermatol 2006; 154:294-298.

[3] Weller K, Balp MM, Hollis K et al. Studie ASSURE-CSU, Poster „P030“ präsentiert auf dem Jahreskongress der DDG, 29.04.-02.05.2015, Berlin; Balp MM, Jeffrey V, Jaijun T et al. Studie SOLVE-BOI, Poster präsentiert auf dem World Congress of Dermatology (WCD), 08.06.–13.06.2015, Vancouver, Kanada.

[4] Weller K, Balp MM, Hollis K et al. Studie ASSURE-CSU, Poster „P030“ präsentiert auf dem Jahreskongress der DDG, 29.04.-02.05.2015, Berlin.

In this episode, paediatric urticaria expert and UCARE driving force, Professor Petra Staubach-Renz reflects on her experience of treating children with chronic urticaria and calls for more research into this important yet understudied group of patients.

Link: https://www.medthority.com/chronic-spontaneous-urticaria-learning-zone/csu-resources/#tab-1

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You are cordially invited to our upcoming UCARE LevelUp webinar on the topic: CU Patient Burden of the Disease to be held on November 25th, 2021 at 5:00 pm CET.

The overall aim of this webinar is to define the most stressing points about the complete burden of the disease.

The webinar will look at OPEN questions in Chronic Urticaria and will address the audience with said questions,...

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On November 19th, Dr Isabelle Boccon-Gibod will speak at the Urtic Hour live from France. She is responsible for CREAK, the national reference center for angioedema at Grenoble University Hospital, which is dedicated to all patients with angioedema regardless of its cause. This is a way of caring for patients that is different from what we experience in Canada. It will be very interesting to...

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Does our current understanding of the pathogenesis of CSU provide hope of a cure for this challenging disease? Find out what Dr Riccardo Asero has to say as he joins our host to discuss some of the most fundamental questions in the field of urticariology.

Link: https://www.medthority.com/csu-learning-zone/podcast-series/

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We are very pleased to cordially invite you to our 1st UCARE LevelUp Fireside Chat taking place on December 1st, 2021, 3:00 to 4:00 p.m. CET.

Join us as 4 UCARE physicians meet to discuss on the following exciting topic: "The next generation: What do junior urticariologists expect from the UCARE network, what do seniors expect from juniors?"

The faculty will be:
Luis Felipe Chiaverini Ensina...

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It is a great pleasure to share the first newsletter from GA²LEN UCARE LevelUp Program which is a Physician Education and Communication Program on Urticaria. Our October newsletter includes Hot topics (Covid-19 in this issue), projects of UCAREs, publications from UCARE collaborative studies, highlights from recent scientific meetings, treatment advice as well as upcoming events (UCARE Hiroshima).
...

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Due to the ongoing Corona pandemic, the organizing committee wants to issue the following statement:

The UCARE Meeting will continue to be a hybrid event with sessions to take place both on-site in Hiroshima, Japan and online.

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On October 28th the first “All Things Urticaria” Live Webinar took place: In collaboration with Prof. Dr. Marcus Maurer and Prof. Dr. Petra Staubach-Renz, Medthority presented a 30-minute independent session chaired by Marcus Maurer, where the expert panel explored some of the key learnings from “All Things Urticaria”, the UCARE network’s podcast series. The webinar is available on demand via the...

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It is well known that chronic urticaria is more common in women than men, but why is this the case? In this episode, our expert guest, Professor Laurence Bouillet, explores gender-based differences in this disease. 

Link: https://www.medthority.com/csu-learning-zone/podcast-series/

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Are you familiar with Angioedema Centers of Reference and Excellence (ACARE)? In this episode, our host is joined by Dr Anete Grumach, to celebrate the recent successes of the ACARE network and discuss the future of this exciting initiative.

Link: www.medthority.com/csu-learning-zone/podcast-series/

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Contact us

GA²LEN coordinating Office
c/o DGAKI
Robert-Koch-Platz 7
10115 Berlin, Germany

UCARE office
Laura Schwenner

info(at)ga2len-ucare.com