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At EAACI 2021 touchIMMUNOLOGY has joined Professor Marcus Maurer (Charité – Universitätsmedizin Berlin, Berlin, Germany) to discuss the rationale behind avapritinib for advanced systemic mastocytosis and the results of the PATHFINDER study.

Questions

Could you give us a brief overview of the disease burden of advanced systemic mastocytosis and the unmet needs in its treatment? (0:26)
What was the rationale for investigating avapritinib in the treatment of patients with advanced systemic mastocytosis? (1:04)
Could you tell us a little about the PATHFINDER study and its findings? (1:39)
How clinically meaningful are these benefits? (2:35)

Link to the video: Marcus Maurer, EAACI 2021: Avapritinib for Advanced Systemic Mastocytosis - The PATHFINDER Study - touchIMMUNOLOGY

Filmed in coverage of the 2021 EAACI Annual Meeting.

News - Meetings - Projects

In this episode, our host is joined by Professor Kiran Godse who shares his experiences of treating CSU in India. Professor Godse provides unmissable insights into the practicalities of CSU care, including economic considerations, as well as his plans to increase the UCARE network’s presence in India and facilitate wider dissemination of educational resources.

Link to episode

Our next, free UCARE LevelUp Fireside Chat takes place on May 19th, 3:30 to 4:15 p.m. CEST.
Join us as 4 UCARE physicians meet to discuss on the following topic: Challenges in developing a scientific project in urticaria

The faculty will be:
Emek Kocatürk Göncü
Koc University Hospital, Istanbul, Turkey – Senior UCARE physician
Jonathan Bernstein
University of Cincinnati...

Professor Jonathan Bernstein joins the UCARE LevelUp podcast "All things urticaria" to discuss chronic urticaria (CU) care in the USA. In this episode, Professor Bernstein shines a light on the challenges faced by US-based physicians and highlights the potential benefits of conducting further research into the diverse population living with CU in North America.

Link to the episode

In this newsletter we share:

The Chronic Urticaria Self-Evaluation APP, CRUSE® and the advantages for physicians and patients in using it.
Urticaria Conference 2021 and expand on some of the program’s highlights
Insightful physicians views on treatment of Chronic Inducible Urticaria (CIndU)
Interview with Dr. Ivan Cherrez about PROMUSE
Updates on the latest happening in LevelUp, 4U and the world of...

In part two of this very special episode, Professor Marcus Maurer is joined once again by his colleagues, Laura, Julia, Reinhardt and Rebekka from the UCARE office to discuss the UCARE LevelUp and UCARE 4U programmes, which aim to inform and educate patients and physicians on the management of chronic urticaria.

Links:
www.medthority.com/chronic-spontaneous-urticaria-learning-zone/csu-resources/
podc...

Dear UCARE friends and colleagues,

We are launching a new project, which is called CU-TIGER, The Characterization of urticaria markers including anti-TPO and IgE in serum.

Background/ rationale

Two endotypes of chronic spontaneous urticaria (CSU) have been recently described, ie Type I autoimmune CSU (aiCSU), which is also called autoallergic CSU and mediated by IgE autoantibodies and...

We are delighted to share the UCARE endorsed, touchIME, accredited touchPANEL DISCUSSION® - "Unlocking the pathogenesis of chronic spontaneous urticaria to inform the future treatment landscape'' has now launched on the touchIMMUNOLOGY® site in the CME zone.

You can view the activity here: touchIMMUNOLOGY® - touchimmunologyime.org/csu-pathogenesis-to-treatment

In this activity, the expert...

Congratulations to Ivan Cherrez Ojeda, Marcus Maurer and the UCARE physicians on successfully completing the UCARE Project CURICT.

The aim of CURICT was to assess the frequency and preference of Internet Communication Technologies (ICTs). The results show that almost all patients with chronic spontaneous and chronic (CSU) and inducible urticaria have access to ICTs and more the majority sees the...

In this very special two-part episode, Professor Marcus Maurer is joined by not one, but four of his UCARE office colleagues, Laura Schwenner, Julia Föll, Rebekka Locke and Reinhardt Britz, to give listeners exclusive insight into the inner workings of the UCARE network, including advice on how to become a UCARE center and updates on exciting new UCARE initiatives.

Links:

www.medthority.com/chro...</span>

In this episode of the “All Things Urticaria”-Podcast, the host Dr. Marcus Maurer is joined by Dr Christian Vestergaard, who offers expert insight into the results of the AWARE study and highlights the urgent need for wider dissemination of the guidelines for CSU management.

Links:
www.medthority.com/chronic-spontaneous-urticaria-learning-zone/csu-resources/
podcasts.apple.com/gb/podcast/all-thin...

Contact us

GA²LEN coordinating Office
c/o DGAKI
Robert-Koch-Platz 7
10115 Berlin, Germany

UCARE office
Laura Schwenner

info(at)ga2len-ucare.com

Marcus Maurer, EAACI 2021: Avapritinib for Advanced Systemic Mastocytosis – The PATHFINDER Study

News - Meetings - Projects

All Things Urticaria – Podcast Episode 40: Chronic Urticaria - An Indian Perspective

Save the date: 3. UCARE LevelUp Fireside Chat on scientific projects - 19 May

All Things Urticaria – Podcast Episode 39: Chronic Urticaria - A North American Perspective

UCARE LevelUp Newsletter 3 — April 28

All Things Urticaria – Podcast Episode 38: UCARE Behind The Scenes Special (Part 2)

New UCARE Project: The Characterization of urticaria markers including anti-TPO and IgE in serum (CU-TIGER)

UCARE endorsed touchPANEL discussion: Unlocking the pathogenesis of chronic spontaneous urticaria

UCARE Project CURICT has been completed

All Things Urticaria – Podcast Episode 37: UCARE Behind The Scenes Special (Part 1)

All Things Urticaria – Podcast Episode 36: Are you CSU aware?

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