The usage, quality and relevance of information and communications technologies in patients with chronic urticaria: A UCARE study

Patients with chronic conditions are increasingly seeking information from information and communications technologies (ICTs) to manage their health. As of yet, it is not known which general or specific ICTs patients use to obtain information on health-related topics and specifically on CU, or how patients perceive the currently available information via ICTs. Gaining knowledge on this is important to better inform CU patients about their disease, to match the right informational content to the right ICTs, and to provide CU-specific ICT platforms if seen as necessary by patients.

Read more about the results of the first UCARE project at the link below:

https://authors.elsevier.com/sd/article/S1939455120303781

In this episode, paediatric urticaria expert and UCARE driving force, Professor Petra Staubach-Renz reflects on her experience of treating children with chronic urticaria and calls for more research into this important yet understudied group of patients.

Link: https://www.medthority.com/chronic-spontaneous-urticaria-learning-zone/csu-resources/#tab-1

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You are cordially invited to our upcoming UCARE LevelUp webinar on the topic: CU Patient Burden of the Disease to be held on November 25th, 2021 at 5:00 pm CET.

The overall aim of this webinar is to define the most stressing points about the complete burden of the disease.

The webinar will look at OPEN questions in Chronic Urticaria and will address the audience with said questions,...

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On November 19th, Dr Isabelle Boccon-Gibod will speak at the Urtic Hour live from France. She is responsible for CREAK, the national reference center for angioedema at Grenoble University Hospital, which is dedicated to all patients with angioedema regardless of its cause. This is a way of caring for patients that is different from what we experience in Canada. It will be very interesting to...

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Does our current understanding of the pathogenesis of CSU provide hope of a cure for this challenging disease? Find out what Dr Riccardo Asero has to say as he joins our host to discuss some of the most fundamental questions in the field of urticariology.

Link: https://www.medthority.com/csu-learning-zone/podcast-series/

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We are very pleased to cordially invite you to our 1st UCARE LevelUp Fireside Chat taking place on December 1st, 2021, 3:00 to 4:00 p.m. CET.

Join us as 4 UCARE physicians meet to discuss on the following exciting topic: "The next generation: What do junior urticariologists expect from the UCARE network, what do seniors expect from juniors?"

The faculty will be:
Luis Felipe Chiaverini Ensina...

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It is a great pleasure to share the first newsletter from GA²LEN UCARE LevelUp Program which is a Physician Education and Communication Program on Urticaria. Our October newsletter includes Hot topics (Covid-19 in this issue), projects of UCAREs, publications from UCARE collaborative studies, highlights from recent scientific meetings, treatment advice as well as upcoming events (UCARE Hiroshima).
...

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Due to the ongoing Corona pandemic, the organizing committee wants to issue the following statement:

The UCARE Meeting will continue to be a hybrid event with sessions to take place both on-site in Hiroshima, Japan and online.

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On October 28th the first “All Things Urticaria” Live Webinar took place: In collaboration with Prof. Dr. Marcus Maurer and Prof. Dr. Petra Staubach-Renz, Medthority presented a 30-minute independent session chaired by Marcus Maurer, where the expert panel explored some of the key learnings from “All Things Urticaria”, the UCARE network’s podcast series. The webinar is available on demand via the...

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It is well known that chronic urticaria is more common in women than men, but why is this the case? In this episode, our expert guest, Professor Laurence Bouillet, explores gender-based differences in this disease. 

Link: https://www.medthority.com/csu-learning-zone/podcast-series/

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Are you familiar with Angioedema Centers of Reference and Excellence (ACARE)? In this episode, our host is joined by Dr Anete Grumach, to celebrate the recent successes of the ACARE network and discuss the future of this exciting initiative.

Link: www.medthority.com/csu-learning-zone/podcast-series/

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Contact us

GA²LEN coordinating Office
c/o DGAKI
Robert-Koch-Platz 7
10115 Berlin, Germany

UCARE office
Laura Schwenner

info(at)ga2len-ucare.com